About Anthony LaPenna
Anthony LaPenna, is a 4 year old boy who was diagnosed with Chronic Intestinal Pseudo Obstruction, CIPO at the early age of 3 weeks old.
CIPO is a disorder in which the intestines function poorly; as if there is an obstruction, but there is no mechanical cause for the dysfunction. The muscles in the gastrointestinal tract are not able to move food through the body making it difficult to receive adequate nutrition orally. When tests are performed, no blockage is found.
From that time to the present Anthony had numerous longterm hospital stays, surgeries and tests, performed at Levine Children’s Hospital, Charlotte, NC and DUKE University Medical Center, Durham, NC. Anthony currently has a broviac line where he receives 16 hours of TPN; a gastrostomy and an Ileostomy. Anthony is strong and determined, but he also has dreams. His dreams consist of many things that most of us take for granted, dreams that are now within reach due to this life-saving transplant.
February 12, 2013 Anthony was listed on the UNOS, National Transplant Waiting List, for a Small Intestine/Liver Transplant. His Transplant will be performed at Duke University Medical Center in Durham, North Carolina.
The cost of a transplant often exceeds $500,000. Many transplant patients are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-needy patients.
An estimated $60,000 is being raised by a growing team of dedicated volunteers for transplant related expenses.